Here is a group shot and a shot of the kids and I at the Great Strides walk for Cystic Fibrosis.
This disease is happening to my friend's children. This disease is happening to her family, to her, to her friends. Yet we all were there together, smiling, laughing, walking and enjoying life.
We celebrated Kennedy's 7th birthday. We celebrated her successes thus far on medicines now that she has been properly diagnosed with CF.
We celebrate her little brother, Harrison who has grown so nicely since the first time I met him. Thankfully he will not have to go through six years of NOT knowing what is wrong with him, but sadly, he too has cystic fibrosis. I sure wish they all lived closer.
How cute is he?
It was such an overwhelming feeling to have all of us fighting for a cure together. Supporting each other, doing what people do for others we love in times of need.
I can't imagine what my friend Stacey must have been feeling through it, seeing everyone make a two hour drive and some making the trip from even further to be with her and her family.
She had no words to express how she was feeling, but there are no words needed because OF COURSE we all would be there and will be there for our friends at any time.
(Her facebook status today..."A million thanks to everyone who supported me and my family at the CF walk!!!! Thanks to everyone who donated online!!! The day was a huge success, the love I felt and have for all my freinds and family cannot be measured! BIG HUGS TO YOU ALL! (special thanks goes out to Stacie and Mrs. Mayer for the amazing photos, what a special gift)")
Seeing the sea of orange and blue, Kennedy's Clan and Harrison's Hoard, was a beautiful sight.
This is the big sister to both Kennedy and Harrison. She does not have CF, but the disease is affecting her in so many ways too.
I know the whole family understands that we are all there.
We are there to hold their hand.
Hopefully someday there will be a cure.
We will hold their hand up in victory.
We will celebrate then just as we celebrate now.
that was very moving, the pictures tell a great story!
ReplyDeleteI have a friend that I went to school with that has CF. She is 40 years old. Amazing!! She is now awaiting a double lung transplant in St. Louis. She has the most positive outlook on life. She always has.
ReplyDeleteOur community lost a 12 year old to CF two years ago. People still give so much in her name.
Loved your post. What a great thing to do to help.
oOh I can't imagine the power and the love that you all felt! Congrats on a job well done...
ReplyDeleteI think that is so kick ass that you went and participated. Your such a great person.
ReplyDeleteLove the pictures! Such a good job...
ReplyDeleteYou rock Stacie. A great friend.
ReplyDeleteWhat fabulous pictures and what an awesome way to make a difference!!
ReplyDeleteP.S. Congrats on your Parents Picks pre-nomination! Go, you!! http://www.parentsconnect.com/parents-picks/best-parenting-blogs
Okay, the name coincidence is just freaky, that is baby girl's name, just different spelling
ReplyDeleteBeautiful! Really, beautiful.
ReplyDeleteGreat photography! What a great cause.
ReplyDelete